Scleroderma is a rare autoimmune disease that causes a hardening of the body’s connective tissue. This disease can also affect internal organs resulting in life-threatening consequences.
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Scleroderma is a rare autoimmune disease that causes a hardening of the body’s connective tissue. Scleroderma literally means “hard skin”. This disease can also affect internal organs resulting in life-threatening consequences.
This is a remarkable and highly inspirational story about a man named Greg Cohen, an athletic trainer and distance runner, who suffers from Scleroderma.
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NBC10’s Erin Coleman spoke with Christy McCaffrey, founder of Project Scleroderma, about her mission to end this disease.
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PROJECT SCLERODERMA
Scleroderma is a rare autoimmune disease that causes a hardening of the body’s connective tissue. Scleroderma literally means “hard skin”. This disease can also affect internal organs resulting in life-threatening consequences.
Scleroderma is a rare autoimmune disease that causes a hardening of the body’s connective tissue. Scleroderma literally means “hard skin.” This disease can also affect internal organs resulting in life-threatening consequences.
Project Scleroderma’s mission is to raise the global level of Scleroderma awareness through informative videos and documentaries. By raising awareness and education we are able to support the patient community as they work to cope with this autoimmune disease
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Awareness is a critical component on the path to finding a cure for Scleroderma. At Project Scleroderma we are committed to helping the Scleroderma patient community be seen and heard. You can help us by watching, learning, and most importantly sharing the videos.
NBC10’s Erin Coleman speaks with Christy McCaffrey, Project Scleroderma’s founder, about her mission to spread Scleroderma awareness and end the disease.
Movement is life. Just keep moving. I am motivated by the ability to use movement as a source of stress relief, inspiration, and a way to find your own personal greatness. It is my passion that defines me, not my disease.
Greg Cohen
For me, Scleroderma is the feeling of being trapped in my own body... So regardless if I'm in pain, I'll still keep moving. Dance is my passion and it's my passion that defines me, not my disease.
Rumbi
I try to find the beauty in everything. Photography gives me a way to appreciate everything around me. Motherhood has given me a purpose to push forward. My life is not defined by unfortunate disorder. It's defined by my passion and my desire to live the fullest life possible.